Yup, still here... But the end is in sight. She's doing better with her stats every day and we are close to getting her feeding schedule back to 30 minutes instead of the continuous feeds they had her on after the surgery.
She had her BAER test last week and it took about 4 hours. Since it is based on a brain response, the babies have to be asleep to get accurate readings. So every time she woke up, we had to wait for her to fall asleep again. But it was worth the hassle - she passed with flying colors! Both of the cochlea are functioning and the right ear even has normal hearing! Looks like she might get a hearing aid on one side and the other won't need anything. Best news we've had in awhile! :)
To try and help deal with the reflux, the doctors ordered her a wedge for sleeping. It's a weird looking bed for sure, but she seems to love it. She sleeps quite well in general, but especially so all snuggled up in her wedge. I am a little jealous they don't make an adult sized one...
Oh and they had to get her a bigger bed to safely use the wedge. They borrowed this one from the pediatric unit and I loved the purple color. Apparently there aren't many purple beds because all of the nurses that came in to her room made comments about it. She's just stylish all around! :)
More soccer playing! Isn't he just adorable? And this time he has the correct socks on. :)
After she got her g-tube, we had to go to the surgeon's office to get our g-tube training. We got instructions on how to switch it out, but very clear instructions to bring her to the hospital if it came out before the 8 week mark. If it falls out before the stoma is fully healed they have to take x-rays to make sure everything is ok.
Well when I went to change her diaper this morning, the g-tube was gone! Apparently the balloon had popped on it and out it came (it was hiding in her onesie). Luckily it happened while we were in the hospital, because I have to admit I may have freaked out a little bit (and possibly said a bad word). But the nurses were on it! They put in a temporary tube until the surgeons could come double check it and it was no big deal.
Stupid balloon...
We're getting so close to going home...! The medical supply company came by the other day to train us on all of the equipment they are sending us home with. It was a bit overwhelming. I am so glad we are getting to take her home and the equipment is making that possible, but look at that mess!